|Emily and her lovelies from her friends. The little grey |
one was from us here at the monkey house!
Molly reached Ms. Emily, otherwise known as Peanut in between hospital stays. This family is amazing in their continued out-reach to others, even when Emily is in the hospital and even during Emily's hospice care . Sara is a huge part of the Microcephaly community and has shared Emily with the facebook group, Parents of Children with any-cephaly group and many others in the any-cephaly community. Emily's battle with her disorders and conditions was tough and heart-breaking to watch, but what made us all marvel was that she still managed to have her pure, wonderful and smiley moments. She was a fighter and no one feels that she lost her battle when she passed away on April 16th, 2012. We all feel that she gained her wings and won a war of love and purity and grace, while she was with her family for 8 short years.
As a mother of a Special Needs child, I often keep my thoughts of Ella's mortality and my fears of when the end of her life will occur at bay. Yet, Sara addressed hers, always allowed her emotions, whether they were hopeful, fearful, or heart-felt right there on her face and in her writings. Sara and Emily are my heroes. I have teared up and out-right cried during this time of mourning for a child that I have never held in my arms, but I hold her and her mother, Sara in my heart!
During Emily's hospice care members of our any-cephaly group began flooding FB with images of Hello Kitty both on Sara Evans page and as their own profile pictures. I did for a little while. My cover photo was a Hello Kitty as well. I also bought Ella a Hello Kitty plush and Lulu gave her a Hello Kitty with a bunny costume for Easter. So, I took many pictures of Ella with her kitties as well as clothes with Hello Kitty on it. Other friends of Emily and Sara did the same.
|Balloons released at the funeral for Emily|
|Ella and me wearing pink in Emily's honor|
|Our buddy, Parker and her family showing|
support with a balloon release of their own.
|The Miller Clan wearing pink and ready to release some balloons|
Love, Heather, Molly, Milly, and Ella